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Channel: Living With Fibromyalgia - Latest topics
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How Ben’s Friends moderators work as a team

Sascha Gallardo – September 29, 2021 Around 45,000 individuals make use of Ben’s Friends communities every month. People suffering from a rare disease are looking for information about how others like...

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Christmas

I wish all the Fibromyalgia family a pain free and a peaceful Christmas, which would be wonderful if that wish comes true. 1 post - 1 participant Read full topic

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Two Disabled Dudes Podcast features Ben Munoz

Sascha Gallardo – March 30, 2021 In Two Disabled Dudes podcast episode number 138, Ben shared inspiring lessons he learned from having an AVM stroke, coping with the loneliness and fear during...

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I really miss you!

Hi my fellow fibro warriors. It’s been a long time. Too long. But I’ve had many days in the year 2022 , that I cried, stared at the walls, cried more, and never felt more alone. There has been some...

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Surgery

This is a real long shot but I thought I would put it out there and hope someone might have had this surgery. I’ve had fibro since diagnosed in my 20’s. There’s always the accompanying conditions that...

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Nonprofit SnapCast features Ben Munoz

Sascha Gallardo – February 24, 2021 Nonprofit Snapcast, a podcast that tackles nonprofit management issues, recently featured Ben’s Friends president and co-founder, Ben Munoz. The interview focused...

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I started Lyrica today

Hello fibro family, I never thought I would try Lyrica but…………here it goes. I see a pain specialist. She took me off gabapentin 300mg three times a day and put me on Lyrica 75mg twice a day. I haven’t...

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Ben’s Friends Lead Interns

Sascha Gallardo – February 1, 2021 Keeping Ben’s Friends communities safe and supportive would not be possible without the help of wonderful people who devote their time and skills to meet this...

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Once Upon a Gene podcast Features Ben’s Friends

Sascha Gallardo – February 22, 2021 Once Upon a Gene recently interviewed Ben Munoz about the story behind the founding of Ben’s Friends, what motivated him to embark on this journey of building...

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Benefits of Having a Rare Disease and Chronic Illness Support Group

Sascha Gallardo – January 29, 2021 Having a rare or chronic illness can make a person feel isolated and lonely. They may have people who definitely care but they would constantly need to connect with...

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Depression and Autoimmune and Chronic Illnesses

Sascha Gallardo – November 18, 2020 One of the things the Ben’s Friends team always tries to emphasize in the communities is to never to feel guilty for being depressed. Instead, members are...

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What’s Your And? Podcast features Scott Orn

Sascha Gallardo – November 5, 2020 Ben’s Friends co-founder and board member Scott Orn was featured recently in John Garrett’s podcast. Titled What’s Your And?, the podcast focuses on the guests’...

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Emotions & Pain

Hey everyone I have been struggling with symptoms of Fibromyalgia. I say symptoms because I believe we can heal our own bodies, as well as we can create our own pain. This is my belief system and I am...

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Do I give up?

For the last few months (about 6) my pain has been increasing all the time, my back pain is a nightmare. The pains in both sides of my body are worse and can’t seem to find anything to help. When my...

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Some of Ben’s Friends secrets to maintaining healthy communities

Sascha Gallardo – October 26, 2020 Ben’s Friends has been successfully running online patient communities for thirteen years and it just continues to grow. We are home to the most active communities...

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Global Genes’ Rare Daily website features Ben Munoz

Sascha Gallardo – September 29, 2020 Ben’s Friends co-founder and chairman, Ben Munoz, was interviewed recently for the Rare Leader, a regular feature of the Global Genes’ Rare Daily website. In the...

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Rare Disease Diagnosis: Difficulties and Advancements

Sascha Gallardo – August 31, 2020 Delays in getting an accurate diagnosis for a rare disease is very common. Patients would visit a physician, present their symptoms, and then they would be told there...

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Rec's for good doc(s) in Seattle

Hi all! I’m newly diagnosed with fibro, hoping to find a good doc (or two) in the Seattle, Washington, USA area. Thanks for your recommendations! 1 post - 1 participant Read full topic

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Hyper-sensitive to drugs & supplements: anyone know why?

And I don’t mean “why me?” specifically, I mean generally: what causes hyper-sensitivity to drugs and supplements? For instance, after recently diagnosing me with fibromyalgia, my neurology team...

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Ben’s Friends inks partnership with ClozTalk

Sascha Gallardo – July 1, 2020 We’re excited to announce that Ben’s Friends has partnered with ClozTalk, a social impact company that helps charities raise people’s awareness of their mission....

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Easter Egg Hunt!

Yesterday Easter Sunday Brought Joy to the Day ! I think everyone will get a laugh out of this and with all going on in the world this was a fun day. I helped host an Easter Egg Hunt for Seniors at a...

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Fibromyalgia and hypotension

Curious if hypotension is something anyone else has/is dealing with? usually have very mild symptoms, but last night for what seems to be no reason, my blood pressure dropped for about 15 minutes. Was...

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Spotlight: Ben’s Friends former Intern, Dr. Melissa Jones, MD

Sascha Gallardo – June 15, 2020 The patients who visit our sites have tons of questions on their mind related to their symptoms, which clinic to visit, the medications they are taking, and the...

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Is anyone feeling this way

Good morning everyone, I have been feeling pretty well these past few weeks. Unfortunately the past 3 days I have extreme headaches, body aches, fatigue and a sore throat. I also have a little bumps...

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Problem with my medication

After being on Nortriptyline for 12 years I have had to come off them. I did this very slowly. I didn’t think they were working much anyway so didn’t mind. How wrong I was! They certainly were doing...

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Help with pain

I am wondering if anyone else has noticed this about their body. I went to work ( massage therapist)today and when I got out of work it was raining and really cold. This is a change in weather. When I...

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Hip bursitis and low grade fevers

Has anyone ever had bursitis of their hips? I’ve been dealing with horrible pain, especially at night, in both hips and my IT band. What has helped you get rid of it? I’m taking anti inflammatories...

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Minnesota vs Arizona

I currently live in Minnesota and am considering moving to Arizona. Has anyone moved to Arizona and did it help your fibromyalgia? Is there a better area of Arizona to live, climate wise? Does anyone...

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Spotlight on Our ModSupport Member: Sharon a.k.a Stoney

Sascha Gallardo – June 4, 2020 Providing a safe and supportive community for patients is our top priority at Ben’s Friends. We want members to freely ask questions, share opinions, and express...

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7 Things to Look for When Choosing a Doctor

Sascha Gallardo – November 1, 2022 When you are experiencing symptoms and know that something is wrong, do you settle with the first doctor you meet? Like many other patients, do you also think that...

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