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Anyone tried this therapy?

Hi, I just wanted to ask if anyone had tried any complimentary therapy called the Bowen technique, which is a holistic, hands on and non invasive therapy. I have been having no luck with anything else...

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Ben’s Friends Self-Advocacy Project for Members

Sascha Gallardo – January 31, 2022 Ben’s Friends to launch Self-Advocacy Project for members Having a rare and chronic illness is definitely not easy. From searching for an accurate diagnosis to...

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Some of the Autoimmune Rare Diseases in Ben’s Friends List of Communities

Sascha Gallardo – July 1, 2022 The immune system is supposed to protect us by attacking bacteria and viruses. For people who have autoimmune diseases, however, their immune system attacks their own...

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New job advice needed

Hi I’m rose here in tn. I am needing advice and so much support. I am depressed daily and have so much pain. I am on pain meds and take as needed only. I have to work a full time job and am new to...

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Connect with Ben’s Friends!

Sascha Gallardo – July 1, 2022 Good news! You can now receive a copy of Ben’s Friends’ quarterly e-newsletter. By subscribing to our newsletter, you will: Get updates about our new and existing...

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MakeMeSmile makes donating to Ben’s Friends through AmazonSmile much easier

Sascha Gallardo – February 23, 2022 Donating to Ben’s Friends through the AmazonSmile Charity Lists program is now easier with the help of MakeMeSmile, a free Chrome extension. Ben’s Friends is one of...

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Desperately Seeking "Susan"- More Advice From Suffering Fibros

I am new to these support groups. I often get too overwhelmed with these platforms because there is so much to read and say. Its taking me a lot to reach out and I have just come to a point with my...

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Symptoms worsening doesn't make fibro progressive

This is often discussed, because “progressive” is misunderstood. Yes, worsening often happens, but: Whilst it may seem to get worse for some, it doesn’t seem so generally… There are many reasons for...

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Ben’s Friends to launch Ben’s Connections soon

Sascha Gallardo – January 31, 2022 Ben’s Friends communities were created so that people affected by a rare or chronic illness can have a place to connect with others like them. Through the years, we...

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Some tips on how to improve your mental and emotional health

Sascha Gallardo – June 7, 2021 Having a rare or chronic illness can be a source of stress. The different symptoms alone, even the mild pain and fatigue, can already lower one’s mood. Add to these...

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How to prepare for a surgery

Sascha Gallardo – May 11, 2021 After so many doctors appointments, you finally have a diagnosis. And as part of the treatment plan, you have to undergo a surgery. Although each type of surgery is...

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Preparing for Your Doctor’s Appointment

Sascha Gallardo – October 13, 2020 Getting the most out of your consultation with a doctor for a rare disease is already challenging. Now that we are also dealing with the Covid-19 pandemic, the...

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Bowen technique

Hi all, So far have had 3 Bowen technique appointments and haven’t noticed any difference except increased pain the first few days after. I’m still hoping things will improve, so am going a few more...

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Epidural shot

Pandora1118 7h Hi my name is Kristen and i have Fibromyalgia, RA, reynoids disease without gangreen, complex regional pain syndrome diagnosed back in 2012. I recently had a epidural shot for buldging...

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Epidural

Hi! I have Fibromyalgia, RA, reynoids disease without gangreen, complex regional pain syndrome diagnosed back in 2012. I recently had a epidural shot for buldging discs in back. Two days after the...

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