Anyone tried this therapy?
Hi, I just wanted to ask if anyone had tried any complimentary therapy called the Bowen technique, which is a holistic, hands on and non invasive therapy. I have been having no luck with anything else...
View ArticleBen’s Friends Self-Advocacy Project for Members
Sascha Gallardo – January 31, 2022 Ben’s Friends to launch Self-Advocacy Project for members Having a rare and chronic illness is definitely not easy. From searching for an accurate diagnosis to...
View ArticleSome of the Autoimmune Rare Diseases in Ben’s Friends List of Communities
Sascha Gallardo – July 1, 2022 The immune system is supposed to protect us by attacking bacteria and viruses. For people who have autoimmune diseases, however, their immune system attacks their own...
View ArticleNew job advice needed
Hi I’m rose here in tn. I am needing advice and so much support. I am depressed daily and have so much pain. I am on pain meds and take as needed only. I have to work a full time job and am new to...
View ArticleConnect with Ben’s Friends!
Sascha Gallardo – July 1, 2022 Good news! You can now receive a copy of Ben’s Friends’ quarterly e-newsletter. By subscribing to our newsletter, you will: Get updates about our new and existing...
View ArticleMakeMeSmile makes donating to Ben’s Friends through AmazonSmile much easier
Sascha Gallardo – February 23, 2022 Donating to Ben’s Friends through the AmazonSmile Charity Lists program is now easier with the help of MakeMeSmile, a free Chrome extension. Ben’s Friends is one of...
View ArticleDesperately Seeking "Susan"- More Advice From Suffering Fibros
I am new to these support groups. I often get too overwhelmed with these platforms because there is so much to read and say. Its taking me a lot to reach out and I have just come to a point with my...
View ArticleSymptoms worsening doesn't make fibro progressive
This is often discussed, because “progressive” is misunderstood. Yes, worsening often happens, but: Whilst it may seem to get worse for some, it doesn’t seem so generally… There are many reasons for...
View ArticleBen’s Friends to launch Ben’s Connections soon
Sascha Gallardo – January 31, 2022 Ben’s Friends communities were created so that people affected by a rare or chronic illness can have a place to connect with others like them. Through the years, we...
View ArticleSome tips on how to improve your mental and emotional health
Sascha Gallardo – June 7, 2021 Having a rare or chronic illness can be a source of stress. The different symptoms alone, even the mild pain and fatigue, can already lower one’s mood. Add to these...
View ArticleHow to prepare for a surgery
Sascha Gallardo – May 11, 2021 After so many doctors appointments, you finally have a diagnosis. And as part of the treatment plan, you have to undergo a surgery. Although each type of surgery is...
View ArticlePreparing for Your Doctor’s Appointment
Sascha Gallardo – October 13, 2020 Getting the most out of your consultation with a doctor for a rare disease is already challenging. Now that we are also dealing with the Covid-19 pandemic, the...
View ArticleBowen technique
Hi all, So far have had 3 Bowen technique appointments and haven’t noticed any difference except increased pain the first few days after. I’m still hoping things will improve, so am going a few more...
View ArticleEpidural shot
Pandora1118 7h Hi my name is Kristen and i have Fibromyalgia, RA, reynoids disease without gangreen, complex regional pain syndrome diagnosed back in 2012. I recently had a epidural shot for buldging...
View ArticleEpidural
Hi! I have Fibromyalgia, RA, reynoids disease without gangreen, complex regional pain syndrome diagnosed back in 2012. I recently had a epidural shot for buldging discs in back. Two days after the...
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